As a parent of a child with a disability or chronic health condition, you know that working with and communicating with many health, education, insurance and social service providers can be difficult. While stressful, it is a very important task in ensuring your child’s medical and non-medical needs are met. Below are resources that may help you in your role as your child’s Care Coordinator.
The Care Coordination Plan Worksheet is a great starting point and should be a “snapshot” of what is happening with your child now, and can be updated regularly. The plan can be shared with those providing care for your child.
Be prepared for your next medical appointment.
Whatever the reason for your visit, it is important to be prepared. With the Question Builder, it is easy to create a list of questions that you can take with you to your appointment. Question Builder
- Web-Based or Printable Family Health History
- Health Care Document Templates (See Build Your Own Care Notebook tab)
- Sample Health Plans and Emergency Care Plans for many conditions. PACER Parent Center, MN
- South Dakota Parent Connection’s FILE (Folder of Information and Life Experiences) is a comprehensive record-keeping system for your child and a useful tool for coordinating your child’s care. To receive a copy contact send an email to firstname.lastname@example.org or call 1-800-640-4553.
MY HEALTH FINDER
Use this easy tool to get personalized health recommendations for yourself or a family member, learn when your child or teen should have well-child visits or immunizations, get helpful tips and resources about parenting, healthy living and keeping children safe, and much more.
DELTA DENTAL DAKOTA SMILES MOBILE DENTAL PROGRAM
The primary mission of the Dakota Smiles Mobile Dental Program is to treat children ages 0-21. The Dakota Smiles program is designed to assist people who do not have access to care and who do not have a dental home (children who have not seen a dentist for two years or live more than 85 miles from a dentist). No child will be turned away for inability to pay for services. The Dakota Smiles Mobile Dental Program includes two trucks that are fully equipped dental offices on wheels. Services provided include: diagnostic and preventive procedures, restorative procedures and tooth extractions.
Mobile Program Information/Schedule
South Dakota Survey Results – 2016 Report by American Academy of Pediatrics Alliance for Innovation on Maternal and Child Health
Thanks to the South Dakota families of children and youth with special health care needs (CYSHCN) that completed the survey!
Conclusion: Parents in South Dakota are encountering many access, coverage and payment issues, and expressed frustration with the lack of available assistance based on survey results. Many survey respondents were parents of children with special health care needs, and several reported that they were unable to obtain recommended care due to issues coordinating care and unmanageable out-of-pocket expenses. There are opportunities to make meaningful improvements in the health care of maternal and child health populations in the state.
Open Enrollment in the Marketplace for this year’s insurance coverage has ended.
Two way to still get health insurance for this year…
- If you qualify for a Special Enrollment Period due to a life event like losing insurance coverage, getting married, or having a baby.
- If you qualify for Medicaid or the Children’s Health Insurance Program (CHIP).
See if you can get insurance for this year at: healthcare.gov/screener