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National Genetics Education and Family Support Center

Date: October 14 at 12:00pm

The National Genetics Education and Family Support Center a core program of Expecting Health, works to improve access to quality genetic services and to reach medically underserved populations.

Join us on Thursday, October 14th at 1pm ET for an engaging and candid discussion with family leaders on the importance of word choice and why language matters.

  • Marisol Rose serves as the State Parent Consultant for Floridas early intervention program, Early Steps, under the Division of Childrens Medical Services within the Florida Department of Health. Her most important role, however, has been raising two young and unique children with disabilities, a son who is twice-exceptional autistic and gifted and a daughter who has Down syndrome.
  • Sarita Edwards serves as the CEO and President at the E.WE Foundation. She began her efforts of advocacy and public policy after receiving a prenatal diagnosis of Edwards Syndrome, Full Trisomy 18. Sarita is dedicated to bringing awareness to rare disease and disability and is also the host of the Being Rare podcast.
  • Linda Hampton Starnes has spent life actively involved in the disability community as a special educator, parent, speaker, volunteer, and advocate. She is the mother of two with very different rare conditions, varying abilities, and complex medical needs. Linda serves as the Statewide Family Leader for Florida's Children's Medical Services - Title V Office within the State Department of Health.

Whether youre a provider interested in gaining better insight into family needs or a parent who wants to share their own experiences, this is a session on how language can impact a familys experience through a genetics journey. Learn what to say, how to say it, and why this all matters.

Please register here. We encourage you all to share this opportunity with your community.

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